Blister bluster ...
PTSD and sound ...
A few years back I was explaining to my doctor some things that I had known about myself for a long time but was noticing that it was getting increasingly worse. I have an intolerance to certain sounds. It doesn't have to be a particularly annoying sound, or abnormally loud, and it's often things that are just written off as "background noise" and hardly even noticed by most people. This intolerance developed about halfway into my first abusive relationship and has gotten incrementally worse over time. The things that trigger me most are running taps and fans. I cannot stand the sound of a running faucet or fan (mainly exhaust fans, like over a stove or the car heater) for more than a few seconds. It becomes all I can hear, no matter what else is going on in the room. It builds up to a deafening sound in my head so that I can't focus, can't think ... I'm disoriented, annoyed, easily irritated, I drop things, I can't carry out simple tasks or finish whatever it was I was doing when it was turned on. Often I get a sharp pain, similar to a headache but not quite, way in the lower back of my head which doesn't go away until long after the sound is gone.
When I described this to my doctor she had some tests run and I was diagnosed with Hyperacusis and Misophonia. She was surprised I'd never heard of them before, expecting that I'd looked it up since I was able to so clearly describe the exact symptoms of it.
So, what are they? Here are a couple of simple definitions:
Hyperacusis is a condition where you have trouble tolerating sounds that do not seem loud to others, such as water running, fans, dogs barking, walking on leaves, household appliances, tapping fingers,rustling papers, even laughter. The sounds that are your triggers (they are not the same for everyone) are amplified to unmanageable heights and cause reactions like I described above.
Misophonia is similar but in this case the sound triggers an emotional or psychological response.
The two conditions are compared as Hyperacusis causes a physical response, while Misophonia causes an emotional reaction. Both are fairly uncommon, but do occasionally coexist. Neither are a definite indication of a hearing deficiency ... my hearing is fine. They can be caused by head trauma and exacerbated by TMJ and PTSD ... yep, I check all those boxes.
My most recent ex knew that I had this problem, particularly with running water. Being who he is, he would sometimes turn on all the taps in the house with screaming instructions forbidding me to turn them off. They often ran all night long, with me lying in bed wide awake, head pounding, anxiety through the roof, in a state of complete panic until long after they were finally turned off. Times like those can make you feel like you are slowly going mad.
In my years of dealing with ptsd, both on my own and in group or individual counselling sessions, I've become pretty good at recognizing and managing situations that I can anticipate being a problem for me, particularly where sound is involved. I do have the exaggerated startle response too, which is a real treat when your autistic kid comes up behind you and presents you with a loud CLAP out of nowhere. Some things can't be anticipated so much and you just suck it up and deal with it as best you can. Other things can be managed more easily.
I choose my phone's sounds very carefully. I had a couple of "ding" sounds for when my sisters text me ... one ding for one, two for the other. But if they got chatty, or even just sent more than 2 messages, the multiple dings would start me down the rabbit hole. So I changed them to a gentle "whoosh" sound. I also often just mute my phone completely.
Often the dogs are in the kitchen when I'm cooking or doing dishes, with the tick tick tick of their toes on the floor, plus the faucet could be running, or the stove fan might be on, so the kitchen is a big trigger area. I try to keep the dogs out of the kitchen completely, partly because I don't want them underfoot and possibly getting stepped on or tripped over, but also to keep that tick tick tick sound away from where I'm already dealing with the other sounds that I can't eliminate. I run water minimally. I use the ceiling fan and open a window to avoid using the cooktop fan. I run the dishwasher when I'm completely finished everything else in the kitchen so I can leave the room.
I have yet to figure out how to turn off the music that plays when the laundry machines finish their cycles but hopefully it's possible.
Multiple people in the house plus critters means that often the tv or tablet or whatever is playing a video or music or something is turned up so it can be heard above everyone. If I can control the rest of the environment so that there are no other triggers, then I can sometimes tolerate this ok ... but if it's just me in the house I usually don't even have any on. No tv, no computer, no videos, nothing. I sometimes have music on in the kitchen when I'm cooking alone, but as soon as there are other noises added to the space it gets turned way down or off. Unless I'm listening to music or playing a game, I don't have sounds turned on my phone or computer most of the time. As soon as I download a game the first thing I do is shut off the sounds.
When I go for a walk, I wear headphones. Then I do listen to music. But this is my music, chosen by me, for me, nothing unexpected or annoying, and it helps block out unwelcome other sounds.
I'm writing this at 5am, the house is quiet, I'm the only one awake and my mind is at rest. Soon, though, the day and its many sounds will begin and I'll get busy dealing with them as they come.
So if I'm at your house, and it gets busy with people, critters, electronics, music .... don't be offended if I have to just step away for a bit. I will come back.
** note ** It has been suggested by some good friends of mine that I try EMDR as a therapy for my PTSD. I know they mean well, and I do appreciate that, but I've looked into it and spoken to many therapists about it over the years and it is not a viable option for me. I have so many types of trauma spread out over so many years by multiple sources that it would take an impossible amount of time and money to even begin it, and because of all of that it's unlikely to be effective. So I do thank them for their concern and suggestions, but it's not for me.
Masks come in many forms ...
Jack
Ain't missing you at all ....
If you have NEVER ....
To all the people who have questioned, criticized, blamed, finger pointed, whispered, gossiped about the various life altering decisions I’ve made over the years, right now please mentally stand up.
If you have NEVER been raped, you may sit down.
If you have NEVER been strangled or choked to near unconsciousness, you may sit down.
If you have NEVER been punched repeatedly by someone who claimed to love you, you may sit down.
If you have NEVER been tortured, you may sit down.
If you have NEVER been pushed down the stairs, you may sit down.
If you have NEVER had someone tell you that unless you leave & never return you will be gang raped, dragged naked through town tied to the back of a truck, then buried under a cement slab in the yard, you may sit down.
If you have NEVER laid awake all night, silent & still, afraid to move or make any sound, you may sit down.
If you have NEVER been sodomized by a person or various other large and painful things, then crawled bleeding & crying to the bath, you may sit down.
If you have NEVER been told that you are a useless waste of space, you may sit down.
If you have NEVER been screamed at & punched in the middle of the night for any or no reason, you may sit down.
If you have NEVER been told that if you’re too “chicken” to kill yourself they’d gladly do it for you, you may sit down.
If you have NEVER had to have surgery to repair damage caused by someone claiming to love you, you may sit down.
If you have NEVER had to hide in your own home until the coast was clear, you may sit down.
If you have NEVER had to stay away from the small people you gave birth to because your life depended on it, you may sit down.
If you have NEVER been kicked in the face while trying to get away, you may sit down.
If you have NEVER been publicly screamed at & humiliated for any or no reason, you may sit down.
If you are still standing, and I’m betting there are none if any left, then you and only you may criticize me. My shoes are awkward, ill-fitting, uncomfortable and not many people that I know could or have walked in them, so until you have, just keep it to yourself because I have enough going on inside my head that I don’t need you in there hammering away too.
Now I’ll sit down, because frankly, I’m exhausted.
Startlingly enough ....
I also have one that I should get back to that will help my body and mind. I had started dabbling in yoga a few years back and I liked it. When I did it regularly it helped me feel physically and mentally more at peace, more relaxed. Both of those are things I'm in desperate need of now more than ever. I think if I get back into doing it on a daily basis (as much as my sprained knee will allow for now) I'll end up much more the better for it. My yoga mat stands rolled up right within sight of the computer as I'm typing this, it's literally right beside me and has been since I arrived here. This book was behind me on the shelf with the others. They're both just sitting there waiting for me to pick them up and get back to it. As they say, there's no time like the present.
Tiptoeing through life ....
Getting over things .....
I survived you.
I wish I had a bubble ...
Ideally it would surround me, move with me, so that nobody could touch me, it would buffer sounds, it would deflect anything/anyone trying to hurt me or get too close to me. Because of all of the physical violence I've endured I find more and more that I really don't like being touched. I used to be a touchy-feely person. I loved holding someone's hand, getting hugs, feeling someone's hand on my shoulder as companionship or comfort.
I learned a while back that I can't handle a massage. I was offered a free massage at a support group as a method of relaxation. I had never had one before and looked forward to it. Then as soon as it started I was immediately transported back to when my ex would come up behind me and hold me down, hands all over me, a foot or arm across my neck or throat to hold me still, elbows jabbing my back to make me stay still, a kick in the head to make me stay put. I was frozen in place and couldn't move, literally stuck there until it was finished. Thus I will never again have a massage, because although it's intended to be a good thing, for me it's literally torture. At the hospice where I volunteer they do free massages every Friday. The woman running it would see me there doing groceries and always offer me one. It was very considerate of her, particularly since they were often booked up, but every time I had to turn her down. I always felt bad that she'd think I was being rude, but I couldn't tell her why, it's not a reason I go around advertising.
A hand on my shoulder, especially unexpected, makes me nearly jump out of my skin. I startle easily, more easily than a lot of people ever expect ... they often think I'm over-reacting, and I am, but not intentionally. It comes from the same source, one of being attacked from behind, being dragged off to have unspeakable things done to me,
If anyone's going to touch me at all, it has to be someone I know really well. Someone I know 100% for sure isn't going to hurt me, physically or otherwise. That is a very short list.
The other day I was reminded that if I ever got fat I would be shot. He has always said that fat people (and children) should all be shot, as he has no use for any of them. I had mis-heard something and thought he'd called me fat and he reminded me if I was, that he could easily get a gun at any time and he would shoot me. He wasn't kidding (though really, who would ever kid about something like that). So my bubble would also have to be bulletproof.
Preferably my bubble would be slightly opaque, so people couldn't really see me completely or clearly. Then if the tears that live directly behind my eyes all the time happened to break free I wouldn't have to worry about anyone seeing. I wouldn't have to worry that someone was looking at me, scrutinizing, criticizing, ready to break me down. I could just walk through a crowd virtually unnoticed.
The problem with bubbles is that although it would keep out all the bad things, it would also keep out all the good things. Like a warm hug from a sister, the smiles of friends, conversations with normal, decent people about anything and nothing.




